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Prior to getting in contact with Pentreath, Viv’s MS (multiple sclerosis) had caused her to get to the point where she felt she could no longer leave the house. Her self-esteem and confidence had been eroded due to the symptoms she was displaying. The symptoms would include falling over or wobbling, continence problems and slurred speech. Very often she was accused of being drunk, hence why her mental well being was slowly deteriorating. Her confidence was completely shattered by all this and Viv found life very difficult. She felt it was being taken away from her and that she had lost all friends bar one. It was only her wonderful family that got her through day to day life with the constant love, support and understanding.
Viv was given the opportunity to access Fit 4 Life with Paul Reeve at Pentreath. Viv said this really helped her as she had got to the point where “I couldn’t even get out of the front door. I had stopped answering the door or telephone and even hid in my home to avoid seeing people. I was in such a dark place when Paul first came. I was so depressed I was visiting the cemetery to pick out a plot. It was only the thought of my sons and family that stopped me.” Through Fit 4 Life, Viv went to Splash Leisure Pool to attend the swimming group. Viv was also able to do badminton and it was this that encouraged Viv to keep attending. Her motivation for this was “if I can go out and wear a swimming costume, I can do anything.” Viv made excellent progress while on the Fit 4 Life project and was naturally referred to the Employment Placement service where she met with Iain Hodgson. Initially, Viv and Iain met at Splash Leisure Centre as it was where Viv felt most comfortable at the time. Further meetings took place in her own home once a rapport had been built between them. From here, Iain and Viv had in depth discussions about her problems and the barriers she felt she faced due to her condition. They decided the first step for progression was to help Viv with her confidence and self-esteem. Together, they worked through the personal development modules offered by Pentreath and Viv felt these really helped.
The next stage in Viv’s journey involved the vocational aspects of the Employment Placement service. They updated Viv’s CV as she hadn’t worked since 1998 and discussed what Viv would like to do in terms of work placements. She had an idea that she would like to work with children but was unsure whether she could due to her MS as during relapses Viv was aware that she could not do a great deal as she found it difficult to even function to look after herself.
As this was the case, Viv and Iain decided that the best road for her to embark on would be training in the first instance so Viv accessed some OCN (Open College Network) courses through the Pentreath Training Department. It was envisaged these courses would increase Viv’s academic abilities and allow her to assess further her capabilities and stamina in relation to her MS. Viv completed five courses and although she found these hard, they definitely had a positive effect on her personal development and subsequently her career. The major thing that kept Viv’s motivation up to keep attending courses, other than her desire to get better, was being involved in a group where everyone was facing their fears and problems. The other factor was the way Mike and Kerry delivered the courses and made her feel worthwhile.
Following the OCN courses at Pentreath, Viv then felt more able to access Voluntary employment. Iain supported Viv to meet with Christine from Volunteer Cornwall to discuss the options available. Christine suggested Viv consider Dreadnought which works with people age 8-19 years who are experiencing difficulties in their lives. After a small discussion, Viv was really excited about the idea and so Iain phoned Dreadnought and spoke to Judy who expressed that she would be more than happy to give Viv a chance. During the time the voluntary placement was being set up, Viv experienced a number of relapses but both Dreadnought and Pentreath were very understanding about this. Viv felt relieved that although she had relapsed, things were still in progress and moving as her CRB check was in process of being sought so things weren’t at a standstill.
Once Viv’s MS was under control again, she felt well enough to attend the induction day with Dreadnought. The induction took place on a Saturday in Pool near Camborne but this wasn't a problem as Iain was able to support her while she was there and then transport her back home. The induction was very beneficial as it was about Child Protection and the children that access Dreadnought.
Fatigue is one of the biggest barriers in MS but despite this, Viv began volunteering for an odd evening a week at Dreadnought in Bodmin. These sessions were held in the evening and Viv had to drive from Kilkhampton to Bodmin, but she was determined to do it, which she did despite the fatigue she experienced. She managed this for a short period. Following this, Iain and Viv made some enquiries as to whether there would be a programme starting nearer to her home and they were informed there was one currently being set up in Launceston. When this had been set up, Viv received a phone call from Dreadnought and was asked if she would volunteer for them in Launceston as she was a valued member of the Dreadnought team and an inspiration to the children. Viv was over the moon with this and it boosted her confidence and self-esteem to another level entirely.
Viv has now been deferred from the Employment Placement service at Pentreath as she feels ready to take part in this placement unsupported. However, Viv is aware that if she requires any help in her future development, she can return to Pentreath. Viv feels she has come a long way since she began engaging with Pentreath and really values the time and effort that has been offered to her by everyone involved. By telling her story, Viv hopes it will inspire other people who feel they have been written off due to neurological or degenerative diseases. She wants them to know they are still valued and that there is always hope for the future. |